March 18 Webinar on Caring for a Child with Pulmonary Hypertension

On Wednesday, March 18, the Nora Thelma Boström Foundation will present a webinar about caring for a child with pulmonary hypertension in partnership with the Pulmonary Hypertension Association. Claire McCormack and Thomas Boström will lead a discussion on the unique challenges in raising an infant or toddler with pulmonary hypertension and offer detailed advice on a variety…

This Time Last Year

One year ago, on November 22, we lost Nora. Somehow we made it through this last year. Each day we would remember what we were doing with Nora one year ago. The one year anniversary of her death brings more finality, knowing we can never say “this time last year we were with Nora.” Nora…

Sunglasses and Bags at the PH Conference

We are very pleased that Nora’s Fund’s first donation was a success. Your donations sponsored a room for kids at the PH Association’s international conference in Indianapolis, Indiana. They also gave the kids backpacks and sunglasses with the Fund’s logo. The kids had fun decorating them. Below are a couple of pictures of the kids…

Nora’s slam dunk

Thank you everyone who participated in the two recent events that benefited Nora’s Fund. We are very excited to report that the Skaneateles Drama cast of The Secret Garden is donating $1500 to Nora’s Fund. Thank you to the talented, generous artists who donated their art work to the auction and to the patrons of…

Events to Benefit Nora’s Fund

There are two events coming up in March where the proceeds benefits Nora’s Fund: The Secret Garden Art Raffle The Skaneateles High School Drama Club will be raffling artwork at its productions of The Secret Garden (March 6-9). All proceeds will go to Nora’s Fund, an organization that provides support for the treatment of chronically…

A Walk in the Rain

It is bone dry in California this year, but usually it is raining a lot. Our San Francisco baby loved to walk in the rain. Here is Nora in June 2011 showing off her new skill – blowing kisses.

Ice Cream in January

All of the donations from 2013 have been counted and we raised $33,237 for Nora’s Fund! Thank you everyone for your generosity. Thomas and I have been going through photos and videos of Nora and we wanted to share some of our favorites with you. Nora had a feeding tube in her nose and throat…

Thank You

As of the end of 2013, we have raised $22,540! We are deeply grateful for the generosity of our friends and family. Initially, we thought we would spend the first year raising funds for a project in 2015. But now we should be able to start helping others in Nora’s name this year. We are…

The Launch of www.norasfund.org

Dear friends and family, On Nora’s birthday last week, we sent out the initial announcement about the creation of the Nora Thelma Boström Foundation. The response we got was incredible. What Thomas and I most fear is that Nora will be forgotten. We created Nora’s foundation in the hopes that we could keep her alive…