Nora is featured in this very comprehensive and well-researched article by Vox’s Sarah Kliff about how and why hospitals do very little to prevent deadly central line infections. Claire also tells her story in a very moving video that we hope will raise awareness among the healthcare community to take action to prevent these very…
The Nora Thelma Boström Foundation sponsored a webinar on caring for infants and toddlers who have pulmonary hypertension, along with the Pulmonary Hypertension Association. Claire and Thomas created the content and presented the material to parents of young children with PH. The PHA said they had a record turnout for a pediatric webinar. One couple…
On Wednesday, March 18, the Nora Thelma Boström Foundation will present a webinar about caring for a child with pulmonary hypertension in partnership with the Pulmonary Hypertension Association. Claire McCormack and Thomas Boström will lead a discussion on the unique challenges in raising an infant or toddler with pulmonary hypertension and offer detailed advice on a variety…
One year ago, on November 22, we lost Nora. Somehow we made it through this last year. Each day we would remember what we were doing with Nora one year ago. The one year anniversary of her death brings more finality, knowing we can never say “this time last year we were with Nora.” Nora…
We are very pleased that Nora’s Fund’s first donation was a success. Your donations sponsored a room for kids at the PH Association’s international conference in Indianapolis, Indiana. They also gave the kids backpacks and sunglasses with the Fund’s logo. The kids had fun decorating them. Below are a couple of pictures of the kids…
We are excited to announce that the Nora Thelma Boström Foundation is co-sponsoring the children’s program at the 2014 International Pulmonary Hypertension Conference in Indianapolis, Indiana. We donated $5,000 of the Fund’s money to this event. The children’s program includes a room for kids who have PH or whose parents have PH. Children can meet…
Thank you everyone who participated in the two recent events that benefited Nora’s Fund. We are very excited to report that the Skaneateles Drama cast of The Secret Garden is donating $1500 to Nora’s Fund. Thank you to the talented, generous artists who donated their art work to the auction and to the patrons of…
There are two events coming up in March where the proceeds benefits Nora’s Fund: The Secret Garden Art Raffle The Skaneateles High School Drama Club will be raffling artwork at its productions of The Secret Garden (March 6-9). All proceeds will go to Nora’s Fund, an organization that provides support for the treatment of chronically…
It is bone dry in California this year, but usually it is raining a lot. Our San Francisco baby loved to walk in the rain. Here is Nora in June 2011 showing off her new skill – blowing kisses.
All of the donations from 2013 have been counted and we raised $33,237 for Nora’s Fund! Thank you everyone for your generosity. Thomas and I have been going through photos and videos of Nora and we wanted to share some of our favorites with you. Nora had a feeding tube in her nose and throat…
Nora's Fund 